Comments for My experience living with Fabry disease

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The Fabry Community
by: Sarah

Hi Sandra,

My name is Sarah and I am a Community Manager at Raremark. We publish news, latest research and community stories in rare diseases on our free-to-access community with 3000 global subscribers with a rare condition.

We have a community for people with Fabry disease:

I just came across your blog and I think it’s great! You’ve got a great writing style. I was wondering if you’d be interested in sharing it with our Fabry disease community?

We would post the content onto our site and then post a link to your blog so our community members can find it.

Here’s an example of a blog we helped share and promote from a community member, Nicola:

Let me know if that’s something you would be interested in and please do message me with any questions. My email is

Best wishes,

Please link to this story
by: Art

In response to Sarah:

Hello Sarah,
Please link to this story! I'm sure the Fabry disease community will benefit and thank you for it.

As far as Sandra personally posting her story on your site, hopefully she'll see this and do just that, the more that get involved the better for all involved!

Thanks for sharing your comments

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